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7/30/2026 8 Comments The Next Chapter - Immunotherapy Tomorrow EvanMarie begins her first round of immunotherapy, the next major step in her treatment for high-risk neuroblastoma. Six days inpatient and twenty-two days at home. This will become our new rhythm for the next five months as we continue trusting God one day at a time. As always, our little warrior princess is walking into the hospital with remarkable courage, and enough joy to brighten the hematology-oncology halls at TCH once again. She continues to remind us that hope is not just something we talk about, it is path we follow everyday. Her hope inspires us. Many people have asked us what immunotherapy actually is. Simply, it helps train her body’s own immune system to recognize and attack any remaining neuroblastoma cells. What makes this especially wild is that this treatment is really new. It was approved specifically for children with high-risk neuroblastoma only about a decade ago, in 2015. Countless badass parents who refused to give up, generous foundations, dedicated researchers, physicians, and children who participated in clinical trials made this all possible. Because of their perseverance, EvanMarie and other precious children like her, now have access to a treatment that simply did not exist for earlier generations. We are profoundly grateful. As we begin this next chapter, we ask for your prayers once again. Please pray that this treatment is both effective and gentle, that it strengthens EvanMarie’s body, destroys any remaining cancer cells, and continues the healing that God has already begun. Please also pray for us, her parents and siblings as we navigate another logistically challenging time. Many of you have asked how you can help in practical ways. One of the greatest gifts during these hospital stays, honestly, has been DoorDash gift cards. They allow us to order healthy meals or groceries, when hospital options are most unhealthy, and they also help provide easy dinners for our children at home while Cana and I are with EvanMarie. These and many of the selfless acts of generosity from our community have been an incredible blessing to our family. Thank you, Team EvanMarie (!!!) for walking this road with us. We have never ever felt alone. We move forward into this next phase with hopeful hearts, grateful for how far we’ve come, and with complete confidence that God, the Divine Physician, loves her and us more than we can ever know. Glory to God in all things.
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7/16/2026 35 Comments The Lord Has Done Great Things“The Lord has done great things for us; we are filled with joy!” Ps 126:3 After nine months of treatment, and two long days of scans, biopsies, and waiting, last night we received the news we’ve all been praying for: Glory to God, there is no detectable cancer. None. Her MIBG scan showed a Curie score of 0, and her bone marrow biopsies were also negative. Even though EvanMarie’s cancer journey isn’t over (she will have at least 5 more months of treatment), today we simply pause, give thanks, and rejoice in God’s goodness. Thank you for praying with us through it all and supporting our little girl. Glory to God in all things. 7/8/2026 12 Comments A special intention Tomorrow marks a gigantic milestone in EvanMarie’s journey. Tomorrow morning she will ring the gong at MD Anderson, celebrating the completion of three weeks of daily proton radiation therapy. Twelve days of anesthesia and treatment in the “spaceship”, and a truly remarkable courage and joy in the hospital (see video below). We are so proud of our little warrior saint and so grateful for the incredible team that has cared for her at Texas Children’s and MD Anderson. We are daily moved to tears for the individuals who make the hope of healing possible for EvanMarie. Y’all, God has been present to us these last ten months, full stop. In the midst of every parents nightmare, we feel strangely fortunate to be this close to His action. Life is beautiful and sacred and needs to be lived. EvanMarie reminds us of this truth everyday. The road to this point has been long. Since her diagnosis, EvanMarie has endured many a variation of Neuroblastoma treatment and now we finish radiation. As I write that sentence, I’m amazed at how “normal” that sounds to me. Yet another example of Grace. Truly, God has been faithful, and your prayers and love has comforted us every step of the way. Your texts and phone calls have been our strength when it got hard. We are grateful. But the journey isn’t over just yet. Early next week she will undergo a CT scan, bone marrow aspirations and biopsy, and an MIBG scan to assess the cancer’s response to treatment. These are the scans we have been working toward for months. The time has come to see the results. Would you please pray and fast fervently with us one last time? We are asking boldly that on July 15th, 2026 there would be no detectable cancer remaining in EvanMarie’s body. We know Christ Jesus, the Great Physician is still at work, and we continue to entrust our precious daughter to His loving care. Through the intercession of Blessed Stanley Rother and the Immaculate Heart of Mary, we beg for complete healing. Lord. Please heal our daughter. Your loving will alone, oh Lord. Friends, thank you for “staying in the room” with us, through every valley and every victory. Whatever these scans reveal, we know that God has been faithful every step of the way, and He will continue to be. Now please go pray. And let us know by clicking here. Glory to God in all things. 7/2/2026 3 Comments Radiation UpdateEvanMarie continues to amaze us.
Today she wraps up her second week of radiation at MD Anderson, and we are so grateful to report that she has been absolutely crushing it. By God’s grace, the side effects have been minimal so far, and she continues to surprise us with her resilience. She still walks into the hospital with a smile, brightens the day of everyone she meets, and somehow manages to bring laughter into places that don’t often hear it. That’s just who she is. Our little girl continues to shine and change the world around her. We have just one more week of radiation before this phase of treatment is complete. After that, we’ll have disease assessment scans later this month to see how everything has responded, so we would be grateful if you would begin praying now for those results. When we have a scan date, we will let you all know and how you can storm heaven with us. Today we are grateful for the countless people who have walked alongside us since September. Thank you for continuing to carry our family in prayer. We know we are not walking this road alone, and that has made all the difference. Please continue to pray boldly for complete healing. Glory to God in all things. P.S. Here are some pictures of the little warrior for your enjoyment: |
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