It was a little bit scary

​In the words of our sweet EvanMarie, “it was a little bit scary!” 

This morning, she had a repeat CT scan — similar to the one that first revealed her cancer diagnosis just a week and a half ago. She amazed everyone today on the CT team by lying perfectly still without any sedation so they could get the images they needed to see how the first cycle of chemo is working.

And the news is good — truly good! 🙌
Thank God, the tumors have shrunk, and her airway is less constricted than it was before. This is exactly the news we had been praying and hoping for!

Now, her full medical team will meet to discuss the next steps: whether she can be safely sedated for the full-body MRI and MIBG scans, and when they can place her new port, which will make it much more comfortable for her to receive medications, chemotherapy, and transfusions moving forward. 

We don’t yet know if she’ll be able to come home before the second chemo cycle, but we do know she is in excellent, loving hands here at Texas Children’s. Our lead oncologist, Dr. Sarah Whiddle, is a neuroblastoma specialist, and she knows her stuff. Also, EvanMarie is having a fine time at her “hotel-hospital”. With music and animal therapy, playrooms, fish tanks, gardens and a library she keeps busy having fun in between therapy and vital exams.

Please continue to pray for complete and total healing for our precious girl, and for deep, lasting peace for her parents and siblings who love her more than words can express. We know God is good, He is near and He will get the Glory no matter the outcome. For us, we will continue to praise Him in this storm. 

EvanMarie’s young life is calling us and many others to a greater trust in His plan. Keep turning to the Father with us! Today we can thank Him for the positive report. The tumor is shrinking! Praise Him.

Blessed Stanley Rother, pray for us. 

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