Update Sunday, September 28

​Our brave girl remains happy and full of light, though understandably exhausted as her body begins to fight a big battle. The oncologists here, who are truly extraordinary in their skill and compassion, believe the diagnosis is neuroblastoma, originating in her adrenal glands and now present in her kidneys, liver, spine, and esophagus.

Last night at 8 p.m., EvanMarie began her first cycle of chemotherapy. For now, she will remain in the PICU, likely through this first cycle, and possibly the second, so that the team can closely monitor her vitals, especially given the tumor’s impact on her airway. As the tumor begins to shrink and her breathing becomes less compromised, we hope to move her from the PICU to the oncology wing of Texas Children’s Hospital.

The staff here continues to astound us with their care, kindness, and dedication, and we are deeply grateful for the countless ways they are supporting EvanMarie and our family.

This is, without question, a very difficult time. Yet even here, in the midst of uncertainty, fear, and waiting, we feel the overwhelming strength of God’s nearness and the love of our community. We are profoundly grateful for the prayers, messages, and support pouring in from across the country and around the world.

A special word of thanks to Fr. Christopher Plant, Fr. James Shadid, and Deacon Timothy Rask for their spiritual and Sacramental care and presence, and to all of you, clergy and lay faithful alike, who continue to lift EvanMarie to the Father. Those in Houston, who have gone above and beyond, you know who you are. We couldn’t have made it these past few days without you.

We ask you to keep storming heaven for her healing, through the intercession of Blessed Stanley Rother, St. Charbel, and Our Lady of Sorrows, all to the glory of God.