Where We Stand Today

​Many of you have asked where exactly we are in EvanMarie’s treatment, so we thought a brief roadmap might be helpful.

Since her diagnosis of high-risk neuroblastoma last fall, EvanMarie has endured a total of six rounds of chemotherapy, countless labs and clinic visits, multiple CT scans, MRIs, MIBG scans, biopsies, blood transfusions, major surgery to remove her primary tumor, stem cell collection, and two autologous bone marrow transplants. For someone who still loves sparkles, unicorn princesses, and the crust cut off of her toast, it’s quite the résumé.

By the grace of God, we are currently home and enjoying a much-needed season of recovery as a family.

Looking ahead, the next steps in her treatment are:

June 23 – July 9: Proton radiation therapy with the MD Anderson Beam Team. Daily outpatient appointments. 

Week of July 20: Disease assessment scans to evaluate her response to treatment

August – December: Five months of immunotherapy back at Texas Children’s Hospital. 6 days of inpatient per month. 

As you can see, we still have plenty of road ahead of us. But we also have every reason to hope. The treatment has been working! The doctors remain encouraged, and our prayer is that by the time Christmas arrives, EvanMarie will be celebrating not only her fourth birthday, no only the birth of Christ, but also a clean bill of health and a body free of cancer.

One thing this journey has taught us is not to get too far ahead of ourselves. So for now, we are focused on the next right step, the next treatment, the next day, and the Daily Bread God provides for our family. 

Thank you for walking this road with us. Your prayers, encouragement, meals, messages, and acts of kindness have carried us this far.

We remain hopeful in her healing. We remain grateful for the daily miracles. And above all, we remain confident that God is with us and that He is good.

Glory to God in all things.

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